Leukaemia Care is dedicated to supporting individuals affected by leukaemia and related blood cancers. Their mission is to provide comprehensive support services to improve the quality of life for patients and their families. They offer a range of services including emotional support, practical advice, and advocacy.

The organisation provides resources such as support groups, counselling, and educational materials to help patients navigate their diagnosis and treatment. Additionally, they work to raise awareness about blood cancer and advocate for better care and treatment options for patients.

What do we need from a volunteer? 

The organisation is seeking a volunteer to assist with the analysis of beneficiary information and the compilation of existing demographic data sources. Currently, data collected from service users is not stored or gathered consistently across their services.

The volunteer will play a vital role in helping the charity to establish uniform data collection processes and gain insights into the demographics of individuals who access and benefit from their services.

The volunteer’s tasks would be to: 

Using a random sample of 30 anonymised cases from each of the charity’s 10 services, (including data available from emails, databases, and SharePoint), identify which of the following are already collected:

  • Leukaemia type
  • Treatment type (names of drug)
  • Treatment status (e.g., never been treated, on treatment, in remission)
  • Time since diagnosis/month and year of diagnosis
  • Protected characteristics (e.g., age, sex, gender, sexual orientation, etc.)
  • Geographic location
  • Socioeconomic status
  • Route to finding the charity/first contact with the charity

Create a comprehensive spreadsheet for collating the data including data source to identify which document each data type was collected from.

Recommend additional demographics or data points that should be collected to fully assess the impact of the charity’s services.

Provide insights and guidance on the creation of a form or new process to routinely collect and store demographic data.

The ideal volunteer: 

  • Has experience of data analysis in Excel
  • Can understand and identify data collection gaps
  • Has experience and understanding of demographic data
  • Can provide guidance and recommendations for consistent data collection and storage
  • Is based in the United Kingdom  
  • Has had their registration confirmed. 

What are the timescales? 

Starting: July 2025  

Closing date for applications: June 30th

We anticipate this to be approximately 5-7 days over 1-3 months of volunteer work. To be completed in time for their September reporting period.

If you are selected to volunteer for this project:  

You will be working directly with Leukaemia Care. PBE is only responsible for matching. If Leukaemia Care shares personal data with you, you should only use the data as instructed by them.  

PBE is an equal opportunity organisation and values diversity. We encourage applications from all parts of the community, and we give all applicants and volunteers fair and equal treatment, regardless of age, race, gender, religion, sexual orientation, disability, or nationality.  

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